Sandra Apler is mother of a small boy who suffers from a mutation of the Syngap 1 gene. She has set up the non-profit organization Leon & Friends which aims at supporting Syngap1 children and at driving research for treatment.

Leon and Friends were the main organizer of the first (virtual) European Syngap1 Symposium (March 15-16, 2021). As ANA we are happy that we could assist in setting this up.

On March 15 2021, Austrian radio Ö1 aired an interview of Sandra Apler and Simon Hippenmeyer (Dimensionen, die Welt der Wissenschaft) by the Ö1 science journalist Marlene Nowotny. ANA received permission to stream this interview.